“For two years, Critical Path Institute (C-Path), the National Organization for Rare Disorders (NORD) and the U.S. Food and Drug Administration (FDA) have joined with others throughout the rare disease community to create a novel, best-in-class platform to accelerate rare disease treatment innovation.”
“On Tuesday, September 14, 10 a.m. – 3:45 p.m. ET, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP®), an FDA-funded initiative, will have its public premiere during the annual meeting for the project. The platform will host, standardize and share rare diseases data as part of its functionality.”
“In addition to the demonstration of the platform itself, presentations throughout the day will show how RDCA-DAP is breaking down data silos, provide insight into the platform’s development and testing process, and showcase the importance of RDCA-DAP from the perspective of critical stakeholders, including academic, clinical, regulatory and patient communities.”
“’We invite colleagues and patients in the rare disease community to join us at the workshop to see the latest developments since launching the RDCA-DAP initiative in 2019,’ said Jeff Barrett, Ph.D., F.C.P., C-Path Senior Vice President and RDCA-DAP Lead. ‘It will be the public’s first look at the platform’s capabilities, showcasing how it can be used to generate solutions for rare diseases…'” Read the full press release here.
Source: Breaking Down Data Siloes: New Analytics Platform Sparks Opportunity for Rare DiseaseField – September 1, 2021. National Organization for Rare Disorders (NORD).
