“As the National Institutes of Health looks to build one of the world’s largest biomedical datasets under the Precision Medicine Initiative’s All of Us research program, NIH is grappling with how to keep the data of a million or more Americans private and secure.
“Everybody’s worried about (privacy), and we are as well,” Francis Collins, MD, director of NIH, testified on Thursday before a House subcommittee. “This is a program that has to maintain the highest standards of privacy and security in order to be credible.”
Collins reassured lawmakers that the All of Us research program is leveraging strong encryption “end to end” for data that is at rest and in motion and that “all of the patient identifiers are stripped off before any of the data is actually moved into a location where researchers have access to it.”
While de-identification — the removal of…”
Source: Health Data Management, Greg Slabodkin, December 1. 2017. Read full article here.
