“The NIH’s All of Us Research Program celebrated its one-year anniversary today with new updates on enrollment progress, previews of its upcoming cloud-based data platform for health researchers and the public beta launch of an online tool for viewing aggregated, de-identified information about the program’s enrollees.”
“’I hoped [one year ago] that many would share this vision and help us achieve this common goal of building a research resource that would make possible the next great discoveries in health and medicine — and boy, have you answered that call,’ NIH Director Dr. Francis Collins said today during a live-streamed event held in Washington, DC…
“The result of all these surveys, sample collections and consumer wearable data sharing is the construction of what Collins said is already one of the largest and most diverse bodies of clinical data yet. Fortunately for researchers, the program is planning to release a “researcher workbench,” an up-to-date cloud platform that will include a variety of tools and filters for research collaboration, before the end of this winter…”
“This emphasis on data accessibility protection was a recurring theme for the NIH, which often highlighted its strategy of engaging program participants as public health stakeholders rather than research subjects. In particular, the project’s leaders said that they want to set new standards for privacy and trust within a research landscape that is increasingly interested in collecting and analyzing sensitive personal information…” Read the full article here.
Source: All of Us celebrates one-year anniversary with public launch of participant data aggregator – By Dave Muoio, May 6, 2019. MobiHealthNews.
